Lily Ketteringham was born 10 weeks prematurely and was diagnosed with spastic diplegic cerebral palsy at the age of nine months
- Lily Ketteringham was born 10 weeks prematurely and was diagnosed with spastic diplegic cerebral palsy at the age of nine months
- She was unable to walk without the aid of a walking frame
- To enable her to walk without the frame she needed surgery, called Selective Dorsal Rhizotomy surgery, which required her to go to the U.S.
- She had the operation on Tuesday and her parents are now hoping she will be able to walk unaided after physiotherapy
After months of tireless fundraising a five-year-old has undergone surgery that will change her life.
Lily Ketteringham has cerebral palsy which meant she was unable to walk without a frame.
However, she has now had pioneering surgery to enable her to walk normally at St Louis Children’s Hospital in Missouri, U.S.
Lily Ketteringham, five, was born 10 weeks early and was diagnosed with cerebral palsy when she was nine months old. As a result, she was unable to walk without a frame
The surgery, called Selective Dorsal Rhizotomy (SDR) surgery, was only available in the U.S. until recently.
It is now being performed at a few hospitals in the UK but according to NICE guidelines Lily’s hips are too far out of position for surgeons to operate in this country.
Speaking from America, Lily’s father, Steve, said the surgery had gone ‘well’.
Lily and her family left the UK on Friday and she underwent the surgery on Tuesday.
Mr Ketteringham, 41, of Newcastle, said: ‘The operation went well and there were no problems. Lily had some back spasms last night which was difficult to see.
‘The next few days will be hard for her as it is bed rest.’
Lily’s family raised £42,000 for her to fly to the U.S. for pioneering surgery to allow her to walk normally. She is pictured in hospital before the operation which took place on Tuesday
It is hoped that the Selective Dorsal Rhizotomy surgery will allow Lily to walk independently after physiotherapy
Lily, who was born 10 weeks early, hasn’t been able to walk or stand unaided since being diagnosed with spastic diplegic cerebral palsy at nine months old.
However, her friends and family helped raise £42,000 to allow her to have the SDR surgery.
The operation is a neurosurgical technique used to treat spasticity (increased muscle tone) in the lower limbs.
It involves opening the lower vertebrae to reveal the spinal cord which contains the neurones of the central nervous system.
These neurones (bundles of nerve fibres) channel messages between the brain and different areas of the body.
Lily (pictured with her father, Steve) is said to be doing well after the operation
The surgery is available in the UK but Lily’s hips were considered to be too far out of position to make the operation possible in this country
During the procedure, electrical stimulation is used to identify and sub-divide sensory and motor nerves.
This process continues until the specific nerves and nerve roots affecting the spastic muscles are identified and cut.
Mr Ketteringham said: ‘When we met the doctor he assessed Lily and told us she would be an independent walker and will probably take her first steps within a year.
‘Fingers crossed that with hard work it will become the greatest day of our lives.’
Mr Ketteringham and Lily expected to return to the UK on February 23 and Lily will start work with her physiotherapist at the Heel and Toe Charity in County Durham.
She will require months, if not years, of physiotherapy to allow her to get the most out of the surgery